Dementia factsheet for carers
Wednesday 23rd October
benenden health produced a web broadcast on the topic of dementia on 18th September 2013. This short factsheet from Carers’ Trust and benenden health provides information for carers.
There are a number of national and local organisations that can support carers. A (non-comprehensive) list of organisations can be found at the end of the factsheet.
There are an estimated 670,000 primary carers (family and friends supporting someone who may otherwise not be able to manage on their own) of people with dementia in the UK. The current cost of dementia to local authorities and families is £23 billion a year.
The majority of people with dementia are cared for at home by a relative or friend and the average age of a family carer is between 60 and 65 years.
Carers who are already caring for someone with a diagnosis of dementia have rights to information, advice and support. Carers of people with dementia should consider obtaining support to access the following services, which can also support carers to plan for the future.
Carers of people with dementia checklist:
Have you had a Carers Needs Assessment?
Are you registered with your GP as a carer?
Have you and the person you care for had a benefits assessment to ascertain you are receiving all the support you are entitled to?
Has the person you care for had a community care assessment?
Have you discussed and begun the process of writing wills and implementing a Lasting Power of Attorney?
Has someone given you information on what dementia is and how it will affect the person you care for?
If you do not feel your concerns are being dealt with or taken seriously, the organisations listed below may be able to help you.
List of organisations and services that can support carers of people with dementia:
Carers Trust – provides the largest network of local carers support services in the UK as well as online services. Find your local service here: http://www.carers.org/
Dementia UK – provides an Admiral Nurse expert helpline as well as local Admiral Nurse support: http://www.dementiauk.org/ or 0845 257 9406.
Alzheimer’s Society/Alzheimer’s Scotland – provides a range of information resources for carers as well as an advice line and local support services: http://www.alzheimers.org.uk/ or 0300 222 1122 (for England, Wales and NI) http://www.alzscot.org/ or 0808 808 3000 (for Scotland).
NHS Carers Direct – provides information for carers and a carers' advice line: http://www.nhs.uk/carersdirect/ or 0808 802 0202.
Dementia Forward – provides a number of services for people with dementia and carers, including a telephone helpline, social activities, and a wellbeing drop-in: http://www.dementiaforward.org.uk/ or 01765 601224.
Age UK – provides a range of information for older people as well as providing a number of local services for all older people: http://www.ageuk.org.uk/ or 0800 169 6565.
Guidance on the Mental Capacity and Lasting Power of Attorney is available here: https://www.gov.uk/government/collections/lasting-power-of-attorney-forms